Information for Parents

Information for Parents 2022-08-31T11:01:37-04:00

Information for Parents

Dealing with your child’s Sickle Cell Disease diagnosis can be overwhelming. It’s common to have countless questions that range from learning more about what SCD is to what one can expect a child’s experience to be across the life spectrum.  Some parents may need medically urgent questions answered and others may be searching for answers to much broader questions.

YOU’RE NOT ALONE, and the Greater Boston Sickle Cell Disease Association, Inc has created this as a resource for all of your questions. The journey of raising a child with SCD may be challenging and we’re committed to providing information to help you make the best decisions, advocate for your child, and connect with other parents.

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